Description of the Uniform Data Set Database 

 
   Lead Investigator:    Duane Beekly
   Institution      :    NACC
   E-Mail           :    beekly@u.washington.edu
   Proposal ID      :    74


   Publications:


1  Beekly DL, Ramos EM, Lee WW, Deitrich WD, Jacka ME, Wu J, Hubbard JL, Koepsell TD , Morris JC,  Kukull WA
   The National Alzheimer's Coordinating Center (NACC) database: the Uniform Data Set
   Journal Article  Alzheimer Dis Assoc Disord,21:249-258,2007,

   PUBLISHED





   Proposal Description:
   The National Alzheimer's Coordinating Center (NACC) is responsible for developing and maintaining a database of participant information collected from the 29 Alzheimer's Disease Centers (ADCs) funded by the National Institute on Aging (NIA). The NIA appointed the ADC Clinical Task Force to determine and define an expanded, standardized clinical data set, called the Uniform Data Set (UDS). The goal of the UDS is to provide ADC researchers a standard set of assessment procedures, collected longitudinally, to better characterize ADC participants with mild Alzheimer disease and mild cognitive impairment in comparison with nondemented controls. NACC implemented the UDS (September 2005) by developing data collection forms for initial and follow-up visits based on Clinical Task Force definitions, a relational database, and a data submission system accessible by all ADCs. The NIA requires ADCs to submit UDS data to NACC for all their Clinical Core participants. Thus, the NACC web site (https://www.alz.washington.edu) was enhanced to provide efficient and secure access data submission and retrieval systems.